When Your Bones Rebel

Hello, I am a Kienbock's sufferer, diagnosed in my mid-40's. Given the 
descriptions of symptoms I have found on the Web, I believe I have just 
entered Stage III last week. The only treatment offered me is 
intercarpal fusion (I believe PRC or arthrodesis), which I am unwilling 
to undergo because I fear the decreased mobility will affect my ability 
to make a living. 

I have googled for the information, but have been unsuccessful in 
finding out how prevalent this condition is. How often is it diagnosed? 
Since being diagnosed myself, I have come across many others with the 
disease. 

I also suffer from a debilitating denegerative arthritic condition in my 
right knee with accompanying deformation. I am currently in my late 
40's. Has my name been changed to I.M. Scrood?